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PD_Pal Learning Toolkit

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PD_Pal Massive Online Open Course

is freely available on edx.org

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    Parkinson's Disease

    Summary

    Getting familiar with Parkinson’s Disease in terms of epidemiology and prevalence, known causes including genetics, environmental and their interactions, how diagnosis is made and communicated and which are the main symptoms.
    Understanding the impact of PD to patients and their caregivers and how the early and timely integration of palliative care can help deal with it.

    Duration

    3 to 4 hours

    Assessment

    • Topic related Discussion/Exercise
    • Self-Assessment (20 multiple choice questions)

    Facilitators

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    Spyridon Konitsiotis

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    Dimitrios Fotiadis

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    Palliative care principles and concepts

    Summary

    Comprehending the palliative care principles.
    Get introduced to the multi-dimensionality of human-being and the complexity of accepting death and non-ideal outcomes.
    Understanding the dynamic involvement of palliative care throughout the illness.
    Get familiar with patient-family oriented care management competencies.
    Taking care of oneself and multidisciplinary team.

    Duration

    3 to 4 hours

    Assessment

    • Topic related Discussion/Exercise
    • Self-Assessment (20 multiple choice questions)

    Facilitators

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    Piret Paal

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    Giovanni Gentile

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    Parkinson’s Disease and its management

    Summary

    Be informed about the available pharmacological treatments for PD.
    Be informed about the surgical options that exist for the advanced Parkinson’s Disease.
    Comprehend the importance of multi-professional, interdisciplinary and continuous management of PD.

    Duration

    3 to 4 hours

    Assessment

    • Topic related Discussion/Exercise
    • Self-Assessment (20 multiple choice questions)

    Facilitators

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    Spyridon Konitsiotis

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    Dimitrios Fotiadis

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    Interdisciplinary approaches for the management of PD

    Summary

    Understand the concepts of multidisciplinary and interdisciplinary approaches and their difference.
    Identify the different healthcare professionals involved in the management of patients with Parkinson’s disease and their roles.
    Learn how to design individual care plans by taking the needs and preferences of the patient and caregiver into account.

    Duration

    3 to 4 hours

    Assessment

    • Topic related Discussion/Exercise
    • Self-Assessment (20 multiple choice questions)

    Facilitators

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    Marjan Meinders

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    Bas Bloem

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    Getting on with life (Living with Parkinson’s)

    Summary

    Understand the impact of PD in common activities of daily life.
    Learning practical tips that will help patients and caregivers improve their quality of life.

    Duration

    3 to 4 hours

    Assessment

    • Topic related Discussion/Exercise
    • Self-Assessment (20 multiple choice questions)

    Facilitators

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    Pille Taba

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    Katrin Sikk

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    Providing care for caregivers

    Summary

    Comprehend what caregiving entails.
    Understand the rights and needs of caregivers.
    Be educated in basic caring skills.
    Become aware of interventions aiming to reduce the burden and distress of the caregiver.
    Understand the role of support groups.

    Duration

    3 to 4 hours

    Assessment

    • Topic related Discussion/Exercise
    • Self-Assessment (20 multiple choice questions)

    Facilitators

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    Pille Taba

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    Katrin Sikk

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    Advance Care Planning and Advance Directives

    Summary

    Be able to identify and describe the different “last decisions” in late stage PD.
    Have basic knowledge on how to make a will.
    Know basics on how to deal with power of attorneys.
    Being part of science: participating in clinical studies and the “brain bank” initiative.
    Have some basic knowledge on the most important research activities in late stage PD.

    Duration

    3 to 4 hours

    Assessment

    • Topic related Discussion/Exercise
    • Self-Assessment (20 multiple choice questions)

    Facilitators

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    Katharina Lex

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    Christiane Weck

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    Stefan Lorenzl

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    Advanced Parkinson`s Disease, Death and Dying

    Summary

    Be able to recognise the advanced stage PD and start or increase the intensity of palliative care.
    Understand the difficulties of the advanced stage.
    Understand and accept the end-of-life decision-making process.
    Be aware of alternative settings and different options for the advanced stage.

    Duration

    3 to 4 hours

    Assessment

    • Topic related Discussion/Exercise
    • Self-Assessment (20 multiple choice questions)

    Facilitators

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    Katharina Lex

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    Christiane Weck

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    Stefan Lorenzl

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    Managing common symptoms in Late Stage PD

    Summary

    Understand the clinical aspects of specialist palliative care in Parkinson’s disease
    Be able to recognize, assess and manage common symptoms in late stage PD
    Understand the social aspects of eating.
    Swallowing problems in the advanced stages of the disease.
    Comprehend when a feeding tube is indicated and what it entails.
    Be aware of speech therapeutics options towards eating.

    Duration

    3 to 4 hours

    Assessment

    • Topic related Discussion/Exercise
    • Self-Assessment (20 multiple choice questions)

    Facilitators

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    Christiane Weck

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    Stefan Lorenzl

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    Loss, Grief management and Bereavement

    Summary

    Identify and describe the losses (and their impact) that patients and their families face across the illness trajectory and (for families) after death.
    Differentiate between loss, grief, bereavement and mourning, including triggers for abnormal of prolonged grief reactions.
    Identify common loss/grief models and describe their value for practice, including identification of complex grief.

    Duration

    3 to 4 hours

    Assessment

    • Topic related Discussion/Exercise
    • Self-Assessment (20 multiple choice questions)

    Facilitators

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    Piret Paal

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    Giovanni Gentile

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    Spiritual Care

    Summary

    Understand the concepts of spirituality, spiritual needs and care.
    Be able to apply the spiritual care model throughout the illness course.

    Duration

    3 to 4 hours

    Assessment

    Facilitators

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    Piret Paal

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    Testimonials and Discussion on Advanced Directives

    Summary

    Comprehend patients’ and caregivers’ views on advance care planning
    Understand different perspectives in complex, advance care decisions

    Duration

    3 to 4 hours

    Assessment

    • Topic related Discussion/Exercise
    • Self-Assessment (20 multiple choice questions)

    Facilitators

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    Stefan Lorenzl

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    Angelo Antonini

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    Anette Schrag

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    Pille Taba