Week 2: Palliative care principles and concepts

Course length

3 to 4 hours

Facilitators

Week 2: Palliative care principles and concepts

Piret Paal

Week 2: Palliative care principles and concepts

Giovanni Gentile

About the course

Part 1- Palliative care philosophy, policy and definitions. Basic understanding of complex symptoms assessment and management and shared decision making.
Part 2- Importance of Self-Care and multidisciplinary team.

Learning Objectives

Comprehending the palliative care principles.
Get introduced to the multi-dimensionality of human-being and the complexity of accepting death and non-ideal outcomes.
Understanding the dynamic involvement of palliative care throughout the illness.
Get familiar with patient-family oriented care management competencies.
Taking care of oneself and multidisciplinary team.

Summary & Scheduling

Part 1- Palliative care philosophy, policy and definitions. Basic understanding of complex symptoms assessment and management and shared decision making.
Part 2- Importance of Self-Care and multidisciplinary team.

Learning Content

Attitude: Participants will see palliative care in terms of the comfort it offers to patients and caregivers. Understand the importance of the unit of care approach.

Knowledge: Participants know the basics of palliative care, specifically:
• What palliative care is
• The dynamic involvement of palliative care throughout the illness
• The Palliative care principles
• The multi-dimensionality of human-being
• The importance of self-care
Skills: Participants will be able to better handle issues related to the complexity of accepting death and non-ideal outcomes.

Teaching Methods

• Presentation (slides)
• Video component
• Self-Assessment
• Reading materials

Literature

Literature • Porter, R. (1999). The Greatest Benefit to the Mankind: A Medical History of Humanity from Antiquity to the Present. Los Angeles: Fontana Press.
• Vanderpool, H. Y. (2015). Palliative Care: The 400-year Quest for a Good Death. North Carolina: McFahrland & Company, Inc, Publishers.
• World Health Organization. (2002). Palliative care. http://www.who.int/cancer/palliative/definition/en/
• Oliver, D.J. et al. (2016). A consensus review on the development of palliative care for patients with chronic and progressive neurological disease. Eur J Neurol. 23(1), 30-38.
• Clark, D. (2015). Public debate begins in Scotland on future of NHS. BMJ, 351, h4266.
• Etkind, S. N. et al. (2017). How many people will need palliative care in 2040? Past trends, future projections and implications for services. BMC Med, 15, 102.
• WPCA (2014). Global Atlas of Palliative Care at the End of Life. In: WHO (ed.).
• WHO (2014). Strengthening of Palliative Care as a Component of Integrated Treatment throughout the Life Course. Journal of Pain & Palliative Care Pharmacotherapy, 28, 130-134.
• Powell, R. A. et al. (2015). Putting palliative care on the global health agenda. The Lancet Oncology, 16, 131-133.
• UNICEF, W. (2018). Astana Declaration. Astana, Kazakhstan.
• Line, D. (2015). Quality of Death Index. https://eiuperspectives.economist.com/healthcare/2015-quality-death-index
• IAHPC (2019). Palliative Care Definition. https://hospicecare.com/what-we-do/projects/consensus-based-definition-of-palliative-care/definition/
• WHO (2017). Ten Facts on Palliative Care. https://www.who.int/features/factfiles/palliative-care/en/
• Becker, E. (1973). The Denial of Death. New York: Simon & Schuster.
• Dor-Ziderman, Y., Lutz, A. & Goldstein, A. (2019). Prediction-based neural mechanisms for shielding the self from existential threat. Neurolmage, Volume 202.
• Department of Health (2012). End of Life Care Strategy: Fourth Annual Report. https://webarchive.nationalarchives.gov.uk/20130104174405/http://www.dh.gov.uk/health/2012/10/end-of-life-care-fourth/
• Smith, R. & Kelly, N. (2012). Global attempts to avoid talking directly about death and dying. The BMJ Opinion. https://blogs.bmj.com/bmj/2012/08/16/richard-smith-and -nataly-kelly-global-attempts-to-avoid-talking-directly-about-death-and-dying
• Paal, P. et al. (2019). Postgraduate palliative care education for all healthcare providers in Europe: Results from an EAPC survey. Palliative and Supportive Care, 1-12.
• Boyd, M. (2016). My Life, My Death: The Voices of Palliative Patients, Informal Caregivers and Health Care Providers. Journal of Pain and Symptom Management, 52, E95-E96.
• BMJ (2017). Palliative Care from Diagnosis to death. https://youtu.be/vS7ueV0ui5U

Assessment

• Presentation (slides)
• Video component
• Self-Assessment
• Reading materials