Learning Objectives
Understand the concepts of multidisciplinary and interdisciplinary approaches and their difference.
Identify the different healthcare professionals involved in the management of patients with Parkinson’s disease and their roles.
Learn how to design individual care plans by taking the needs and preferences of the patient and caregiver into account.
Summary & Scheduling
How to design care plans accordingly to patients’ and families’ wishes integrating multi-professional and interdisciplinary approaches (3 hours)
Learning Content
Attitude: Prioritize patients and caregivers needs and design and implement personalized, interdisciplinary management and care plans based on shared decision making. Acknowledge the role of allied professionals.
Knowledge: Participants know the basics of interdisciplinary care, specifically:
• multi-professional, coordinated care
• the different healthcare professionals involved in patients with Parkinson’s disease
• when to involve which healthcare professional according to the care needs of the patient
• how to design individual care plans by taking the wishes of the patient and caregiver into account
Skills: Participants will be able to understand the competencies interplay and the professional limits, as well as who/what is the best source to give/get sufficient solutions and answers for the patients’ needs. Adopt a methodology for providing interdisciplinary care based on patients’ and caregivers’ needs.
Teaching Methods
• Presentation (slides)
• Video component
• Reading materials
Literature
• Brinkman-Stoppelenburg, A., Rietjens, J. A., & Van der Heide, A. (2014). The effects of advance care planning on end-of-life care: a systematic review. Palliative medicine, 28(8), 1000-1025.
• Bruera, E., Kuehn, N., Miller, M. J., Selmser, P., & Macmillan, K. (1991). The Edmonton Symptom Assessment System (ESAS): A Simple Method for the Assessment of Palliative Care Patients. Journal of Palliative Care, 7(2), 6-9. doi:10.1177/082585979100700202
• Fox, S., Azman, A., & Timmons, S. (2020). Palliative care needs in Parkinson’s disease: focus on anticipatory grief in family carers. Annals of Palliative Medicine, 9(Supplement 1), 34-43.
• Fox, S., Cashell, A., Kernohan, W. G., Lynch, M., McGlade, C., O’Brien, T., . . . Timmons, S. (2017). Palliative care for Parkinson’s disease: Patient and carer’s perspectives explored through qualitative interview. Palliative medicine, 31(7), 634-641.
• Giladi, N., Manor, Y., Hilel, A., & Gurevich, T. (2014). Interdisciplinary Teamwork for the Treatment of People with Parkinson’s Disease and Their Families. Current Neurology and Neuroscience Reports, 14(11), 493. doi:10.1007/s11910-014-0493-1
• Giles, S., & Miyasaki, J. (2009). Palliative stage Parkinson’s disease: patient and family experiences of health-care services. Palliative medicine, 23(2), 120-125.
• Hudson, P. L., Toye, C., & Kristjanson, L. J. (2006). Would people with Parkinson's disease benefit from palliative care? Palliative medicine, 20(2), 87-94.
• Irish Palliative Care in Parkinson’s Disease Group. (2016). Palliative care in People with Parkinson’s disease: Guidelines for professional healthcare workers on the assessment and management of palliative care needs in Parkinson’s disease and related Parkinsonian syndromes. In: University College Cork Cork.
• Kalf, J., de Swart, B., Bonnier, M., Hofman, M., Kanters, J., Kocken, J., . . . Munneke, M. (2011). Guidelines for speech-language therapy in Parkinson's disease. Nijmegen, The Netherlands/Miami, FL: ParkinsonNet/NPF.
• Keus, S., Munneke, M., Graziano, M., Paltamaa, J., Pelosin, E., Domingos, J., . . . Struiksma, C. (2014). European physiotherapy guideline for Parkinson’s disease. The Netherlands: KNGF/ParkinsonNet.
• Lennaerts, H., Groot, M., Rood, B., Gilissen, K., Tulp, H., van Wensen, E., . . . Bloem, B. R. (2017). A Guideline for Parkinson’s Disease Nurse Specialists, with Recommendations for Clinical Practice. Journal of Parkinson's Disease, 7, 749-754. doi:10.3233/JPD-171195
• McLaughlin, D., Hasson, F., Kernohan, W. G., Waldron, M., McLaughlin, M., Cochrane, B., & Chambers, H. (2011). Living and coping with Parkinson’s disease: perceptions of informal carers. Palliative medicine, 25(2), 177-182.
• Miyasaki, J. M., & Kluger, B. (2015). Palliative care for Parkinson’s disease: has the time come? Current Neurology and Neuroscience Reports, 15(5), 26.
• Miyasaki, J. M., Long, J., Mancini, D., Moro, E., Fox, S., Lang, A., . . . Arshinoff, R. (2012). Palliative care for advanced Parkinson disease: an interdisciplinary clinic and new scale, the ESAS-PD. Parkinsonism & related disorders, 18, S6-S9.
• Radder, D. L. M., de Vries, N. M., Riksen, N. P., Diamond, S. J., Gross, D., Gold, D. R., . . . Bloem, B. R. (2019). Multidisciplinary care for people with Parkinson’s disease: the new kids on the block! Expert Review of Neurotherapeutics, 19(2), 145-157. doi:10.1080/14737175.2019.1561285
• Sturkenboom, I., Thijssen, M., Gons-van Elsacker, J., Jansen, I., Maasdam, A., Schulten, M., . . . Munneke, M. (2011). Guidelines for occupational therapy in Parkinson's disease rehabilitation. Nijmengen, The Netherlands/Miami (FL), USA: ParkinsonNet/NPF. Heruntergeladen von http://www.parkinsonnet. info/media/14820461/ot_guidelines_final-npf__3_. pdf am, 3, 2016.
• van Asseldonk, M., Dicke, H., van den Beemt, B., van den Berg, D., ter Borg, S., Duin, G., . . . van Harten, B. (2012). DIETETIC GUIDELINE FOR PARKINSON’S.
• van der Marck, M. A., & Bloem, B. R. (2014). How to organize multispecialty care for patients with Parkinson's disease. Parkinsonism & related disorders, 20, S167-S173.
• van der Marck, M. A., Kalf, J. G., Sturkenboom, I. H. W. M., Nijkrake, M. J., Munneke, M., & Bloem, B. R. (2009). Multidisciplinary care for patients with Parkinson's disease. Parkinsonism & related disorders, 15, S219-S223. doi:https://doi.org/10.1016/S1353-8020(09)70819-3
• WHO. WHO Definition of palliative care Retrieved from https://www.who.int/cancer/palliative/definition/en/
Assessment
• Presentation (slides)
• Video component
• Reading materials