Learning Objectives
Understand the concepts of spirituality, spiritual needs and care.
Be able to apply the spiritual care model throughout the illness course.
Summary & Scheduling
It introduces basic concepts, such as spiritual dimension, spirituality and presents a comprehensive spiritual care model for managing PD.
Learning Content
Attitude: Participants will also tap into the spiritual dimension sensibly so as not to cause false hopes or increasing vulnerability in patients with PD and their caregivers.
Knowledge:
• The terms spiritual dimension, spirituality, and spiritual care
• The impact of spirituality and unmet spiritual needs to patients‘ and their caregivers lives
• The meaning of patient-cargiver centred care model(s)
• The importance of self-care strategies and support for professionals
Skills: Healthcare professionals will be prompted to explore their own spirituality also as a defence to emotional coolout/burnout whist providing palliative and terminal care.
Teaching Methods
• Presentation (slides)
• Video component
• Self-Assessment
• Reading materials
Literature
• Best M. Dignity in Palliative Care. In: MacLeod RD, Van den Block L. editors. Textbook of Palliative Care. Springer Nature Switzerland AG, 2019:1-11.
• Best M, Leget C, Goodhead A, et al. An EAPC white paper on multi-disciplinary education for spiritual care in palliative care. BMC Palliat Care 2020;19:9.
• Centeno C, Arias-Casais N. Global palliative care: from need to action. Lancet Glob Health 2019;7:e815-6.
• CHANG, GITLIN D., PATEL R., 2011, The depressed patient and suicidal patient in the emergency department: evidence-based management and treatment strategies, in Emergency medicine practice, vol. 13, nº 9
• Chirico F. Spiritual well-being in the 21st century: It is time to review the current WHO’s health definition. J Health Soc Sci 2016;1:11-6.
• Chochinov HM, Hack T, Hassard T, et al. Dignity therapy: a novel psychotherapeutic intervention for patients near the end of life. J Clin Oncol 2005;23:5520-5.
• Gamondi C, Larkin P, Payne S. Core competencies in palliative care: an EAPC white paper on palliative care education: part 2. Eur J Palliat Care. 2013.
• Harris DA, Jack K, Wibberley C. The meaning of living with uncertainty for people with motor neurone disease. J Clin Nurs 2018;27:2062-71.
• Kleinman A. Patients and Healers in the Context of Culture. An Exploration of the Borderland between Anthropology, Medicine, and Psychiatry. Berkeley, Los Angeles & London: University of California Press; 1980.
• Kleinman A. The Illness Narrative. Suffering, Healing & the Human Condition. New York: Basic Books; 1988.
• Lipscomb J, Gotay C, Snyder C. editors. Outcomes Assessment in Cancer: Measures, Methods and Applications. Cambridge: Cambridge University Press; 2004.
• McSherry W, Smith J. Spiritual Care. In: McSherry W, McSherry R, Watson R, editors. Care in Nursing: Principles, Values and Skills. Oxford Oxford University Press; 2012. p. 118.
• Paal P, Lex KM, Brandstötter C, Weck C, Lorenzl S. Spiritual care as an integrated approach to palliative care for patients with neurodegenerative diseases and their caregivers: a literature review. Ann Palliat Med 2020.
• Penner LA, Roger K. The person in the room: how relating holistically contributes to an effective patient-care provider alliance. Commun Med 2012;9:49-58.
• Piderman KM, Breitkopf CR, Jenkins SM, et al. The feasibility and educational value of Hear My Voice, a chaplain-led spiritual life review process for patients with brain cancers and progressive neurologic conditions. J Cancer Educ 2015;30:209-12.
• Piderman KM, Radecki Breitkopf C, Jenkins SM, et al. The impact of a spiritual legacy intervention in patients with brain cancers and other neurologic illnesses and their support persons. Psychooncology 2017;26:346-53.
• Roger K, Wetzel M, Hutchinson S, et al. "How can I still be me?": Strategies to maintain a sense of self in the context of a neurological condition. Int J Qual Stud Health Well-being 2014;9:23534.
• Sharpe M, Stone J, Hibberd C, et al. Neurology out- patients with symptoms unexplained by disease: illness beliefs and financial benefits predict 1-year outcome. Psychological Medicine 2010;40:689-98.
• Snyder J, Adams K, Crooks VA, et al. "I knew what was going to happen if I did nothing and so I was going to
do something": faith, hope, and trust in the decisions
of Canadians with multiple sclerosis to seek unproven interventions abroad. BMC Health Serv Res 2014;14:445.
• Topic related Discussion/Exercise
• Self-Assessment (20 multiple choice questions)
Assessment
• Presentation (slides)
• Video component
• Self-Assessment
• Reading materials